MLA Gold Award Site

Tay-Sachs Disease: Background information when reading The Still Point of the Turning World

Summary |  Excerpt |  Reviews |  Beyond the Book |  Readalikes |  Genres & Themes |  Author Bio

The Still Point of the Turning World

by Emily Rapp

The Still Point of the Turning World
  • Critics' Opinion:

    Readers' Opinion:

  • First Published:
    Mar 2013, 272 pages
    Paperback:
    Feb 2014, 272 pages

  • Rate this book


Book Reviewed by:
Norah Piehl

Buy This Book

About this Book

Beyond the Book:
Tay-Sachs Disease

At the age of nine months, Emily Rapp's son Ronan was diagnosed with a deadly disease called Tay-Sachs. The disease is caused by the lack of a vital enzyme called hexosaminidase-A (Hex-A); the result is a progressive buildup of a fatty substance in nerve cells that causes destructive neurological decline and eventually death. There is no cure. A baby with Tay-Sachs can appear "normal" up until six months, although the disease is present even in the fetal stage; at that half year point, however, any developmental progress begins to decline, and the child who could once crawl or babble is eventually unable to see, move, or even hold his or her head upright.

NTSAD Tay-Sachs is a genetic disease, named for Warren Tay, a British opthamologist who, in 1881, first identified a characteristic red spot on the retina, and Bernard Sachs, a New York neurologist who, a few years later, described the cellular changes of the disease. Many people know that Tay-Sachs is prevalent in the Ashkenazi ...

Members Only

BookBrowse's reviews and backstories are a members-only benefit. Full information is available on books for a limited time when they are featured as "Editor's Choices" - but that time has now elapsed for this book.

Join Today


Member Login


Library Patrons

Support BookBrowse

Become a Member and discover books that entertain, engage & enlighten!

Join Today!

Book Discussion
Book Jacket
Victoria
by Daisy Goodwin

"A hit…The research is impeccable, the attention to detail, perfect." - The Sunday Mirror (UK)

About the book
Join the discussion!

First Impressions

  • Book Jacket

    Lillian Boxfish Takes a Walk
    by Kathleen Rooney

    "Effervescent with verve, wit, and heart" - Booklist, starred review

    Read Member Reviews

Win this book!
Win No Man's Land

No Man's Land
by Simon Tolkien

Inspired by the experiences of his grandfather, J. R. R. Tolkien, during World War I.

Enter

Editor's Choice

  • Book Jacket: Ruler of the Night
    Ruler of the Night
    by David Morrell
    Amateur sleuth Thomas De Quincey is back in a mystery set in Victorian England. This time, he and ...
  • Book Jacket: A List of Cages
    A List of Cages
    by Robin Roe
    Robin Roe has written one helluva young adult debut novel. Alternating first person narratives by a ...
  • Book Jacket: Homesick for Another World
    Homesick for Another World
    by Ottessa Moshfegh
    The frizzy, freaky, funky, and frazzled all pile on in this much anticipated short story collection ...

Word Play

Solve this clue:

H W S W T Devil S H A L S

and be entered to win..

Books that     
entertain,
     engage

 & enlighten

Visitors can view some of BookBrowse for free. Full access is for members only.

Join Today!

Your guide toexceptional          books

BookBrowse seeks out and recommends books that we believe to be best in class. Books that will whisk you to faraway places and times, that will expand your mind and challenge you -- the kinds of books you just can't wait to tell your friends about.