MLA Gold Award Site

Tay-Sachs Disease: Background information when reading The Still Point of the Turning World

Summary |  Excerpt |  Reviews |  Beyond the Book |  Readalikes |  Genres & Themes |  Author Bio

The Still Point of the Turning World

by Emily Rapp

The Still Point of the Turning World
  • Critics' Opinion:

    Readers' Opinion:

  • First Published:
    Mar 2013, 272 pages
    Paperback:
    Feb 2014, 272 pages

  • Rate this book


Book Reviewed by:
Norah Piehl

Buy This Book

About this Book

Beyond the Book:
Tay-Sachs Disease

At the age of nine months, Emily Rapp's son Ronan was diagnosed with a deadly disease called Tay-Sachs. The disease is caused by the lack of a vital enzyme called hexosaminidase-A (Hex-A); the result is a progressive buildup of a fatty substance in nerve cells that causes destructive neurological decline and eventually death. There is no cure. A baby with Tay-Sachs can appear "normal" up until six months, although the disease is present even in the fetal stage; at that half year point, however, any developmental progress begins to decline, and the child who could once crawl or babble is eventually unable to see, move, or even hold his or her head upright.

NTSAD Tay-Sachs is a genetic disease, named for Warren Tay, a British opthamologist who, in 1881, first identified a characteristic red spot on the retina, and Bernard Sachs, a New York neurologist who, a few years later, described the cellular changes of the disease. Many people know that Tay-Sachs is prevalent in the Ashkenazi ...

Members Only

BookBrowse's reviews and backstories are a members-only benefit. Full information is available on books for a limited time when they are featured as "Editor's Choices" - but that time has now elapsed for this book.

Join Today


Member Login


Library Patrons
Member Benefits

Join Now!

Check the advantages!
Just $10 for 3 months or $35 for a year

    •  
    • FREE
    • MEMBER
    • Range of media reviews for each book
    • Excerpts of all featured books
    • Author bios, interviews and pronunciations
    • Browse by genre
    • Book club discussions
    • Book club advice and reading guides
    • BookBrowse reviews and "beyond the book" back-stories
    •  
    • Reviews of notable books ahead of publication
    •  
    • Free books to read and review (US Only)
    •  
    • Browse for the best books by time period, setting & theme
    •  
    • Read-alike suggestions for thousands of books and authors
    •  
    • 'My Reading List" to keep track of your books
    •  

Editor's Choice

  • Book Jacket: The Atomic Weight of Love
    The Atomic Weight of Love
    by Elizabeth Church
    A prologue set in 2011 introduces readers to this novel's unforgettable narrator. Meridian ...
  • Book Jacket: Murder at the 42nd Street Library
    Murder at the 42nd Street Library
    by Con Lehane
    It doesn't matter if you're stopping in your favorite library to quickly pick up a book, or settling...
  • Book Jacket: The Loney
    The Loney
    by Andrew Hurley
    Landscape can be a writer's best friend. Whether it's the mountains of England's lake...

First Impressions

  • Book Jacket

    The Curious Charms of Arthur Pepper
    by Phaedra Patrick

    In a poignant and sparkling debut, a lovable widower embarks on a life-changing adventure.

    Read Member Reviews

Members review books pre-publication. Read their opinions in First Impressions

Win this book!
Win The Children

From NYT bestselling author Ann Leary

The captivating story of an unconventional New England family.

Enter

Book Discussions
Book Jacket
Girl Waits with Gun
by Amy Stewart

An enthralling novel based on the forgotten true adventures of one of the nation's first female deputy sheriffs.

About the book
Join the discussion!
Word Play

Solve this clue:

I I A Greek T M

and be entered to win..

Books that     
entertain,
     engage

 & enlighten

Visitors can view some of BookBrowse for free. Full access is for members only.

Join Today!

Your guide toexceptional          books

BookBrowse seeks out and recommends books that we believe to be best in class. Books that will whisk you to faraway places and times, that will expand your mind and challenge you -- the kinds of books you just can't wait to tell your friends about.