Tay-Sachs Disease: Background information when reading The Still Point of the Turning World

Summary |  Excerpt |  Reviews |  Beyond the Book |  Readalikes |  Genres & Themes |  Author Bio

The Still Point of the Turning World

by Emily Rapp

The Still Point of the Turning World
  • Critics' Opinion:

    Readers' Opinion:

  • First Published:
    Mar 2013, 272 pages
    Paperback:
    Feb 2014, 272 pages

  • Rate this book


Book Reviewed by:
Norah Piehl

Buy This Book

About this Book

Beyond the Book:
Tay-Sachs Disease

At the age of nine months, Emily Rapp's son Ronan was diagnosed with a deadly disease called Tay-Sachs. The disease is caused by the lack of a vital enzyme called hexosaminidase-A (Hex-A); the result is a progressive buildup of a fatty substance in nerve cells that causes destructive neurological decline and eventually death. There is no cure. A baby with Tay-Sachs can appear "normal" up until six months, although the disease is present even in the fetal stage; at that half year point, however, any developmental progress begins to decline, and the child who could once crawl or babble is eventually unable to see, move, or even hold his or her head upright.

NTSAD Tay-Sachs is a genetic disease, named for Warren Tay, a British opthamologist who, in 1881, first identified a characteristic red spot on the retina, and Bernard Sachs, a New York neurologist who, a few years later, described the cellular changes of the disease. Many people know that Tay-Sachs is prevalent in the Ashkenazi ...

Members Only

BookBrowse's reviews and backstories are a members-only benefit. Full information is available on books for a limited time when they are featured as "Editor's Choices" - but that time has now elapsed for this book.

Join Today


Member Login


Library Patrons

Support BookBrowse

Become a Member
and discover your next great read!

Join Today!

Book Discussion
Book Jacket
The Opposite of Everyone
by Joshilyn Jackson

"Quirky and appealing characters, an engaging story, and honest dialogue make this a great book!"
- BookBrowse

About the book
Join the discussion!

Award Winners

  • Book Jacket: A Great Reckoning
    A Great Reckoning
    by Louise Penny
    Canadian author Louise Penny is back with her twelfth entry in the Chief Inspector Armand Gamache ...
  • Book Jacket: Homegoing
    Homegoing
    by Yaa Gyasi
    It's all very well to challenge people to be the masters of their own destiny, but when you&#...
  • Book Jacket: When Breath Becomes Air
    When Breath Becomes Air
    by Paul Kalanithi
    When Breath Becomes Air is the autobiography of Paul Kalanithi, written in the time period between ...

First Impressions

  • Book Jacket

    Victoria
    by Daisy Goodwin

    Daisy Goodwin breathes new life into Victoria's story, and does so with sensitivity, verve, and wit." - Amanda Foreman

    Read Member Reviews

Who Said...

Dictators ride to and fro on tigers from which they dare not dismount. And the tigers are getting hungry

Click Here to find out who said this, as well as discovering other famous literary quotes!

Word Play

The Big Holiday Wordplay:
$400+ in Prizes

Enter Now

Books that     
entertain,
     engage

 & enlighten

Visitors can view some of BookBrowse for free. Full access is for members only.

Join Today!

Your guide toexceptional          books

BookBrowse seeks out and recommends books that we believe to be best in class. Books that will whisk you to faraway places and times, that will expand your mind and challenge you -- the kinds of books you just can't wait to tell your friends about.